An Unparalleled Residential Care Experience

Posted on 22 July 2023 by Nicky Macfarlane

We are one big happy family (we even have competitive games nights!)

You’d be surprised how many people come to Huntington House for a short burst of respite care and request to return full-time afterwards.

That’s because though many of our residents experience the inevitable ailments which come with age, the buzz and activity in our home mean these ailments are a tiny part of an otherwise full and rich life.

However, back in their own home, former residents can feel unstimulated, bored and palpably alone, and these ailments loom large throughout an otherwise empty day.

No wonder they’re so happy to come back.

An unparalleled care experience

Take a walk through our house or grounds on any given day, and you’d be forgiven for thinking you were in a typical family home. Listen as you explore, and you’ll hear the friendly (and sometimes cutthroat) competition of group games and the excited chatter of another outing being planned.

Feast your eyes on the beautiful resident-made artwork adorning our walls. Feast your taste buds on our delicious food, served family-style and as tasty to eat as it is nourishing.

This colourful mosaic of care is possible as Huntington House is family owned and run. The family feel of our house supports us as we do all we can to gently encourage each resident to live their life as an individual, with the independence, personal freedom and expression they enjoyed while living at home.

Residents build relationships with other residents and our staff, which does wonders for their mental health. We help residents to continue with hobbies they used to love and even to learn new ones, thanks to team members and other residents.

Our residents have a quality of life that just can’t be replicated in a home care or other care environment.

Yes, we have a beautiful house and splendid grounds, a large, well-trained and loving team and years of caring experience, but what really makes us stand out is our steadfast value of meaningful care – the key tenet of the Dragonfly Approach, which we faithfully follow.

The Power of Meaningful Care

In traditional care, the day is run along task lines, and care can be perfunctory. Boxes are ticked off throughout the day – “make the bed”, “give them breakfast”, and “hand out medicine”. There’s barely time to get to know residents and no time to think about them as people with hopes, dreams and desires.

However, at Huntington House, we understand that our relationships with people, places and things all influence who we are and how we feel.

Our life is made meaningful by relationships which meet our need for love, attachment, belonging and comfort. These relationships make us feel secure, free and able – helping us to feel at home in ourselves, our bodies and our lives. This is as true at age ten as it is at age 100+.

When there’s a lack of warm relationships, as can happen in other care environments and at home, it adversely affects mood, mental and physical health and quality of life.

As identified in a recent Age UK report on loneliness, physical and mental health difficulties are key drivers in loneliness and ‘can reduce older people’s ability to participate in community activities and inhibit their ability to maintain or establish meaningful relationships’.

Our residents know that at Huntington House, relationships are everything. We ensure that all residents are “free to be me” and able to create a rich, full, nourishing life.

Believing wholeheartedly in the Dragonfly Approach means we value emotional intelligence, domestic living and respect, and we support every resident, caring about and for the whole person so they can write the next chapter of their story.

Our wonderful team magics this ethos to life. All over our house and grounds, and when we’re out on trips and outings, we bring colour, love and care to each resident’s daily life. Huntington House is one truly big happy family – arguments about Monopoly and all!

“She refers to them as ‘friends’, and that includes the staff as well as the people living in the home. It is this blurring which makes Huntington special. She is incredibly fond of them. I love that they will sometimes pop in and suggest going for a walk outside, which she loves. It feels very normal and relaxed rather than doing something to or for her. That’s beyond valuable to her.” – Family member.

At the Huntington & Langham Estate, we provide luxury care across our two specialist care homes. Family-owned and run, we offer dignified, compassionate and personalised care to our residents, giving them the nurturing support they need to continue living full, independent and meaningful lives.

To arrange a visit to the Estate and tour our homes and grounds, please call 01428 604 600 or complete this form.

Easter Pottery Painting

Posted on 11 April 2023 by Nicky Macfarlane

The crafting continues at The Huntington & Langham Estate after moving seamlessly from making greetings cards for Valentine’s Day to painting pots for Spring bulbs.

The residents at Huntington House have been busy again with a visit from Dolly Pots who run mobile ceramics painting sessions. We spent a lovely morning decorating the plant pots, Easter bunnies and baskets before they then went off to be fired, before being returned in time for planting up and displaying around Huntington House over the Easter weekend.

The painting brought people together and prompted plenty of conversation about the changes of the season and all things Spring, and also offered a sense of purpose for people wanting to continue their love of gardening.

Moving into a care home is often prompted by the daunting prospect of continuing to look after a whole house and garden independently. However, it doesn’t have to spell the end of a love of gardening.

In fact, many of the bedrooms at The Huntington & Langham Estate have their own manageable garden areas or direct access to an area of patio you can personalise. Indeed, there is also 30 acres of grounds to enjoy as well, with blossom trees in full bloom at this beautiful time of year.

How we beat the winter blues with crafts and baking

Posted on 18 January 2023 by Nicky Macfarlane

With the Christmas decorations taken down and Christmas cake all but crumbs in the tin, what better way to beat the winter blues than some craft making and baking.

Christopher had a great morning decorating some freshly made buns, whilst Graham and Sue wrapped up for a lovely walk around the estate in the warm winter sun.

Our colouful winter window display had the perfect backdrop of a snowy lawn outside of Huntington House, for residents using the lounge to enjoy a chat whilst continuing with their hobbies. Michael particularly enjoyed some colouring.

For more ideas to help relieve the winter blues take a look at our Art therapy activities ideas

Reminiscing with Haslemere Museum

Posted on 7 October 2022 by Nicky Macfarlane

The residents had a wonderful morning learning and reminiscing about old household items brought along by Haslemere Museum.

Founded in 1888 by Sir Jonathan Hutchinson, the aim of the museum was to encourage learning through the handling of objects. To this day that ethos remains and we are fortunate to have the team bring along artefacts for the residents to explore on a regular basis.

These reminiscence sessions are always thoroughly enjoyed by the residents of both Langham Court and Huntington House, sharing their knowledge and memories of the items being passed around.

Advice for planning the move into a care home

Posted on 30 September 2022 by Nicky Macfarlane

When the decision has been made to make the move into a care home, there are a number of things to think about whilst planning the actual move. Forward planning will help to ease what can be a challenging time for all involved, just as any house move can be.

Overcoming any personal concerns before the move

For the person moving home it can be a big change, so it is important for family supporting the move to be supportive and considerate of their feelings, as the thought of the move is bound to be daunting. Whilst there will be lots to think about and organise, our advice is to remember to take time out to listen to any concerns in order to be able to find answers and offer reassurance.

We find those who visit us here at The Huntington and Langham Estate a number of times before the big day, become more familiar with their new home and by meeting the team and residents, they start to build new friendships quickly. If time and budget permits, it is also worth considering a short respite stay, in preparation for a full time move.

Arranging the best day to move into a residential home

For many families of a relative planning to move into a care home, due to work and family commitments the weekend is generally the best time, however not all residential care homes will take admissions over the weekend. We are more than happy to welcome you all any day of the week.

“I love to be able to welcome our new residents and their families over a weekend, as we understand the pressures of juggling work and family commitments during the week and want to make the move a stress free for everyone” Sarah Chapman, Director

We suggest agreeing the schedule with the wider family, as far in advance as possible so that the day itself runs smoothly. When you arrive its easy to just stay in the new room, but at Huntington House and Langham Court we encourage families to take time to go with their loved one to meet other residents and staff members, or to spend time in the shared areas together.

Our team will be on hand to welcome you all and we are conscious how upsetting the big goodbye on the first day can be, so are happy if the family slip away whilst our homemakers involve our new resident in doing something, so there isn’t the big break.

Visitors are welcome at anytime and we can arrange to prepare lunch for guest in one of our private rooms.

Packing for a move into a care home

As with any move it is good to plan ahead what to bring along to your new home.

There may be some items you want to replace or treasured possession not to be forgotten. If you are packing for someone else, it can be easy to forget or not know their favourite items of clothing for example so again, it’s good to open up the conversation well in advance, to give time to decide what is or isn’t coming.

As space may be a little more limited, it’s good to check this when you visit the home and plan how the items of furniture coming along will fit in the available space.

A few tips we share with families are:

As with the H&L Estate there are generally phone points in all bedrooms and private phonelines can be connected via BT, who will allocate a personal number to the room and bill in the same way as in a private home.
Electronic devices – any devices being taken with you into a new home will need to be in working order and in some cases checked by an expert (PAT tested) to make sure they are not a fire risk. So if there is a favourite radio or alarm clock which you plan to bring it is worth checking this in advance so not to be without it.
Internet – WIFI is available in each room and the team are on hand to help set up personal computers or tablets.
Pets – At the Estate we are happy to discuss loyal pets also joining our extended family, and will just have a few questions to check before giving the green light.
Clothing – It is a good idea to label clothes, as this will help them to not get muddled up in the laundry.

Top tip for making a care home feel like home

At H&L we actively encourage our residents to place items around the home, not just in their private rooms, as you will see if you visit us we have an eclectic array of artwork and photography around the walls all from our residents.

We have a great guide to help families think about how to decorate their loved one’s space as the things we have around our home generally have a memory or significance attached to them.

All of our rooms will be freshly decorated for your arrival and you’ll have a choice of colour, with new residents welcome to bring their own bedding to make their private room more familiar.

We also encourage you to bring your own furniture and will make our best efforts to make the room available before move day to bring in any pieces of furniture into the home.

Let our family look after your family

We work hard to make The Huntington and Langham Estate a home away from home and empower each person to continue living how they wish to. We don’t talk about activities and interests, we talk about life and living and have received some wonderful feedback from both our residents and their families which you can see here

We would love to invite you to visit our beautiful estate.

Please contact us via the web form or give us a call on 01428 604600 – one of our friendly team members will be happy to help you.

Royal Reminiscence

Posted on 23 September 2022 by Nicky Macfarlane

Whilst there was a somewhat sombre atmosphere around The Huntington & Langham Estate since hearing the news of the death of Her Majesty, Queen Elizabeth II, the residents have been joining together in periods of reminiscence with wistful storytelling. The joy of hearing stories that might otherwise have been lost in the sands of time, has however lifted the mood.

Parties on the high seas

A resident of Huntington House shared memories of attending parties on the Royal Yacht as a child, invited alongside her father who served as an engineer on the vessel.

Hide and Seek with a future Queen

A resident of Langham Court remembers her mother telling the story of helping to hide a young Elizabeth during a game of hide and seek while working in member of the Royal Family’s household.

Writing history

Upon hearing these unique perspectives from Queen Elizabeth II’s reign, the residents of The Huntington & Langham Estate were provided with pages from the book of condolences from Guildford Cathedral, where these stories have now been recorded and immortalised.

Hidden treasure

Over the next few weeks we will also be collecting current coins, stamps and other memorabilia, which will be buried in a time capsule in the grounds of the estate. Alongside planting a Royal Gala apple tree, which will bear fruit around the anniversary of Queen Elizabeth’s death every year.

The importance of short term Respite Care

Posted on 26 July 2022 by Nicky Macfarlane

The importance of short term Respite Care

The demand for Respite Care during the summer months is unsurprisingly high, with many families heading off on holidays whilst their children are on the summer break from school and others planning action packed days, during the warm weather.

For those who have a caregiving role in the family, the need to balance the support they give with their wider family can be challenging at this time of year. Whilst caregiving is very rewarding, it is demanding both physically and mentally and being able to take time away, can be hugely beneficial to health and wellbeing.

What is the purpose of Respite Care?

Taking a break from caring for someone else is the main reason people consider respite care, giving carers time for themselves. This can be based on day care, care in the home or a short stay at a residential care home of 1 to 4 weeks.

When is it time to consider Respite Care?

There are many reason caregivers make the decision to organise Respite Care for a person they support and our recommendation where possible is to plan this ahead of time during busy periods like the Summer Holidays.

Simply take time out to reboot and recharge physically and mentally
To enable them to spend more time with children or the family during school holidays
When the list of general household to do’s aren’t getting done and they need to catch up on themselves.
During renovation work to the home, which is likely to be disruptive
The need to attend medical appointments or treatment themselves
They simply just need a break

What are the benefits of short term residential respite care?

Whilst there are a number of options available for a respite break, such as asking friends or family to help out, employing a live-in carer or sourcing home care from a paid carer, there are added benefits from opting for short term residential care.

A short term stay in a luxury all inclusive residential home like Huntington House, can be a holiday in itself for people who need extra help in their day to day lives or live alone with change of scenery and the peace of mind being in a welcoming, safe and secure environment.

These short stays can also be a great opportunity to trial the services and environment of a Residential home, if a full time move is being considered. The socialness of joining in activities and chatting to the other residents and staff is often the thing people enjoy the most from their stay.

Respite Care for people living with Dementia can also be beneficial when it is in a specialist dementia care home like Langham Court. With the reassurance the person living with dementia’s needs will be taken care of, gives carers peace of mind to have a break whilst the stimulation of taking part in activities created with individual abilities and needs in mind can be a positive experience for those living with dementia

Who pays for respite care?

Where respite care can’t be fully funded within the family, there is funding available for respite care and local councils will complete an assessment of both your individual living and financial circumstances. This will be completed as a carer’s assessment and a needs assessment for the person who needs the care.

The Huntington & Langham approach to respite care

Whether recovering from an operation, injury or medical condition, or if you’re a carer and need somewhere safe for your loved one to stay while you take some time for yourself, our respite care is second to none and comes part and parcel with complete peace of mind.

We create a personalised care plan before any stay so that you and your loved ones can relax, knowing we’re providing specialist support in a comfortable home from home. We often find people settle into the home very quickly and extend their stay.

“I don’t think you could find many Huntington’s. It’s extremely well run. Different people get different things. I love it! I came for two weeks and have stayed for months. It’s the attitude you just couldn’t fault. They have been very understanding to me as a smoker as so many places don’t these days. AND they’ve let me have my dog Woolly – they had a vote on it and then Maggie said “Woolly is welcome!” Respite Resident at Huntington House

You’ll be welcomed into the family and are encouraged to make the most of all that we have to offer here, such as an exciting activities programme, freshly-cooked meals and beautiful gardens, along with high quality care from our fantastic team.

Huntington House is a leading accredited Level One Dragonfly Residential Home. In our recent audit we received an Excellent rating from the team at Meaningful Care Matters, who described our care as:

“A highly engaged service with a high value on meaningful moments and a true person-centred philosophy, which is congruent in look, sound and feel as well as with regulatory compliance requirements. People’s individuality and expression is evident, and people can express that freedom and be themselves.

Our Home Maker team have a great mix of different skills and interests which helps offer variety in the day; with some residents enjoying the more structured activities such as quizzes whilst others value time with the team who are great at offering more 1-to-1 time and conversations.

How can I organise Respite Care?

If you, as a caregiver, need some time out, or you feel your loved one might benefit from a change of scenery, our respite and daycare services could be ideal for you.

We encourage anyone thinking of Respite care to come and visit us to take a tour of the homes and Estate, simply give us a call on 01428 604600 or Email us at huntington@hlestate.co.uk

How we lead the way as a Dragonfly Care Home

Posted on 21 July 2022 by Nicky Macfarlane

Why we believe meaningful care matters

Huntington House continues to lead the way in the provision of residential care and as the first accredited Level One Dragonfly Home, achieving an Excellent rating from Meaningful Care Matters, for the delivery of the Dragonfly Approach in 2022.

Offering a highly engaged service with a high value on meaningful moments and a true person-centred philosophy. People’s individuality and expression is evident and people can express that freedom and be themselves.

“I don’t think you could find many Huntington’s. It’s extremely well run. Different people get different things. I love it! I came for two weeks and have stayed for months.

It’s the attitude you just couldn’t fault. They have been very understanding to me as a smoker as so many places don’t these days. AND they’ve let me have my dog Woolly – they had a vote on it and then Maggie said “Woolly is welcome!” Resident of Huntington House

A leading Dragonfly care home

Meaningful Care Matters conducted the audit during June 2022, accrediting the home with flying colours, recognising the hugely impressive achievement of the whole team at the Huntington & Langham Estate after the challenges of the last two years from managing Covid-19.

On receiving the news Charlie Hoare, Managing Director of The Huntington and Langham Estate said:

“I’m so very proud of our team, and completely overwhelmed with the outcome, especially having managed to maintain such a high standard of true person-centred care when Covid-19 has presented so many challenges along the way.

Reading the report made me incredibly emotional, having needed to navigate the government Covid-19 guidance over the last 2 years, whilst maintaining our family ethos and the Dragonfly Approach at Huntington House. Knowing that the effort to balance it all, has had a positive impact on people’s lives makes it all worthwhile.

There is something so fundamental about looking after each other; it is why we exist as humans. Life in care homes should reflect life in general, and while the care industry still has a way to go to achieve a truly holistic approach, being the first accredited Level One Dragonfly Home is arguably the best evidence that we are leading the way.

For me, both professionally and personally, it’s the positive comments from the people that live and work here that are so important, as well as feedback from family members.

Having an independent audit by Meaningful Care Matters, ensures that we remain focused on the most important part of running a care home; the people and their freedom to be themselves.

The expert insights provided in this years report, into how to embrace people’s individuality, and the impact of the environment on their experience of life in a care home, will become our care encyclopaedia for the next year, until the next audit!”

Working with Meaningful Care Matters

Established in 2019, Meaningful Care Matters (MCM) focuses on the development of resilient relationship-centred cultures of care shaped by the people living and working within them. MCM believe that caregiving is meaningful for everyone involved when cultures of care express the personhood of people within them. In these person-centred services both “caregivers” and recipients of care can flourish.

The Dragonfly approach is about the ‘whole person’. While traditional care focuses primarily around clinical needs, the Dragonfly approach gives control back to the person who is being cared for and values the person on an emotional and social level, meaning each person is “free to be me”.

“There is a real feeling of home here. It is informal relaxed and family like. We always ask “How would I want my loved one to be treated?” That’s the starting point. With the Estate, you can feel the love – everyone truly does care and people have fun!

Even during the pandemic, we managed to have outdoor parties and we could use the buggies to go round the beautiful gardens”. Team Member at Huntington House

There is lots more information about The Huntington and Langham Estate available on our website. https://huntingtonlangham.estate/

We love to show people around the Estate and our two wonderful homes so please do send us an Email to huntington@hlestate.co.uk or call us 01428 604600 to arrange a visit.

How do you choose the right type of Care Home?

Posted on 19 April 2022 by Nicky Macfarlane

For many people, it is not until you find yourself in the situation where, either a close relative or you need greater support with personal care, that the question “What types of care homes are available?” needs answering.

If you then find yourself overwhelmed with the multiple and varied choices you can have to receiving care and support, you are certainly not alone.

Thankfully there are several independent practical guides and resources online, which we can recommend to explain the options available and provide practical tips on choosing the right type of care.

What is the difference between a care home and a nursing home?

The AgeUK website is a good place to start your research, so you can be clear what the differences are between a care home and a nursing home and how these relate to people living with Dementia.

Age UK offer an overview of the main types of care provision and an independent view of the options available.

Care Homes – is the most commonly used phrase when referring to services such as ‘providing personal care, such as washing, dressing, taking medication and going to the toilet. They may also offer social activities such as day trips or outings’.
Nursing Homes – (or Care Homes with nursing) ‘provide personal care as well as assistance from qualified nurses. Sometimes called care homes with nursing.’
Care Homes with dementia care – ‘designed to make people with dementia feel comfortable and safe’
Nursing Homes with Dementia Care – whilst not currently covered by Age UK on their website, this is a specialist category of care for those living with Dementia that we would also include given our experience at Langham Court where we are able to offer our residents bespoke nursing care aligned to their personal needs.

How do I choose a Residential Care Home?

Before starting on your journey to creating a shortlist of prospective homes, we would always recommend talking to a professional, such as a GP to help establish the right approach to care needed for yourself or a loved one.

A needs assessment is, however, only part of the process to choosing the right home. The style of home you select is a very important decision when it comes to making the move into Residential Care of any genre.

There are several national chains of Residential care providers in the UK, many offering a hotel or concierge style experience for residents at their properties. With smaller regional chains offering their own models of care, by comparison at The Huntington and Langham Estate, as we are a family owned and run home, we are passionate that we offer just that – a family home from home for all our residents.

Everyone’s approach to how they like to live is personal, which is why we encourage our prospective residents, along with their families to visit us and spend time familiarising themselves in our home. Quite often it’s the moment people step through the door that they know it’s right. Just like buying a new house, it’s the location, outlook, decoration, and layout which create those first impressions.

With so many properties and models of care available, Carehome.co.uk is a good source of information, offering a comprehensive directory of over 17,000 homes across the UK. Their website makes it easy to search by location and type of care. Featuring reviews and awards, also offering comprehensive details of each property and a rating for comparison.

What makes a good Care Home or Nursing Home?

The Care Quality Commission (CQC) are the main regulatory body of all health and social care providers the nation over.

Carrying out inspections of all properties they are a good source of information about the standard of care you should expect to receive, rating the 5 set categories of: Safe / Effective / Caring / Responsive and Well-led.

We go beyond these categories to focus on a person centred care approach, partnering with Meaningful Care Matters to provide a meaningful experience for our residents everyday allowing them to be “Free To Be Me” each and every day. All of our team are conscious of doing the right thing “in the moment” for our residents, rather than be constrained by schedules or processes.

Adopting the Butterfly and Dragonfly approaches to care, we believe we are able to improve the quality of life and lived experiences for all in our care.

What are the options to fund care homes or self-funding your long term care?

3 useful links to begin your research into the funding of care are listed below. Talking to a local solicitor or accountant can also be a good source of information as they will often be supporting others take the most effective approach to funding care.

We would also be happy to share our knowledge of options for funding for anyone considering becoming a resident at The H&L Estate.

We are here to help you make the right choices

Whilst choosing the right care home or nursing home can seem daunting, with lots of things to be taken into consideration, there is lots of help available and a willingness to help. After all we are all #GladToCare.

Please do get in touch with us if you would like to visit The Huntington & Langham Estate, the kettle is always on!

Understanding Parkinson’s – Part I

Posted on 30 March 2020 by Ricky

Parkinson’s is a condition we’re familiar with at Huntington and Langham. As something we deal with on a daily basis, the effects on both the individuals and their families are not always widely understood. This is something we endeavour to change…

Providing support to those who need it is of utmost importance to us, be it in the form of nursing care within our home or helpful advice for those who need it most. And so, we sought a little help from our friends at Parkinson’s UK to delve a little deeper into how living with Parkinson’s can affect you or someone you love. The leading charity for Parkinson’s, offering support for those living with Parkinson’s, their aim – much like ours – is to help those with Parkinson’s improve quality of life.

Combining this expert insight, with our practical knowledge of managing Parkinson’s, we’ve created a series of articles to help you provide the best support you can to those who need it most.

What is Parkinson’s?

Parkinson’s is a progressive neurological condition for which there is currently no cure. It’s the fastest growing neurological condition in the world, and currently there are around 145,000 people living with Parkinson’s in the UK.

Common symptoms include slowness of movement and muscle stiffness, but there are over 40 symptoms and it affects everyone completely differently.

Some of the less well-known symptoms include:
– Stress and anxiety
– Chronic pain and fatigue
– Loss of smell
– Changes in digestion or sleep

People with Parkinson’s lack a chemical called dopamine, because specific nerve cells inside their brain have died. Dopamine allows messages to be sent to the parts of the brain that coordinate movement.

For those living with Parkinson’s, this means that parts of their brain are unable to work normally. They may find that movements become slower, so it takes longer to do things. This can make everyday activities, such as eating, getting dressed, and using a phone or computer difficult or frustrating.

What’s the link between age and diagnosis?

Parkinson’s can affect anyone at any age. There are around 1,750 people under the age of 50 who have young onset Parkinson’s, but the majority of people will be diagnosed over the age of 60.

How can someone living with Parkinson’s manage and cope better?
The three main treatments to help someone manage their Parkinson’s are:
– Medication
– Exercise
– Therapies

Everyone’s Parkinson’s is unique. So different combinations of medication, exercise and therapies will suit different people. We recommend people talk to their GP, specialist or Parkinson’s nurse to see what works for them. There are lots of ways to connect with people who understand what it means to be living with Parkinson’s.

To find out more, call Parkinson’s UK on 0808 800 0303. You can also join the online community on the forum, and hear other people’s tips, stories and experiences in the online magazine.

Is Parkinson’s hereditary?

It’s very rare for Parkinson’s to run in families. The vast majority of people have what is called ‘idiopathic Parkinson’s’, meaning that there’s no known cause. However, for a small minority of people with Parkinson’s, there is a genetic link.

How does living in a care environment benefit someone with Parkinson’s?

In the advanced stages of Parkinson’s, it’s likely that an individual will need extra support to carry out day-to-day tasks. This may affect their choice of home. They may decide that they could benefit from a care home or from care in their own home to help manage their condition.

A care home will offer more personal care than sheltered housing. As Parkinson’s symptoms progress and your needs increase, a move to a care home may be a necessary consideration.

How do you think activities such as fitness and activity can be of benefit?

Exercise is good for people with Parkinson’s. It can be as important as medication to help people take control of their symptoms and doing just 2.5 hours of exercise a week can even slow the progression of symptoms. However, there isn’t a one-size-fits-all approach and the best exercise to do will depend on the way Parkinson’s affects you.

How does a Parkinson’s diagnosis affect relationships and family life?

Parkinson’s may affect your self-image, mood and how you communicate with others. This may happen if you’re in a casual or committed relationship, or if you’re single. Some people have relationship issues in the early days, when they’re adjusting to diagnosis, while others may run into problems after many years of living with Parkinson’s.

Each person with Parkinson’s has their own experience of the condition. The symptoms you have may be different from other people. It’s important to remember that many people go through sexual and relationship issues at some stage in their life, so any problems you have may have nothing to do with Parkinson’s at all.

How has Parkinson’s research developed? Is a cure looking likely?

In the past 50 years, vital discoveries have been made that have revolutionised our understanding of Parkinson’s and the brain.

Now, thanks to this progress, breakthrough new treatments are being tested in clinical trials that have the potential to slow, stop or even reverse Parkinson’s.

What about family and friends?

Family and friends are often the information seekers and may focus on the person living with Parkinson’s needs rather than their own. It is important that family and friends recognise the impact of Parkinson’s on their lives and prioritise and maintain their own health & wellbeing too. It can be really valuable for family and friends to access support for themselves and connect with others in similar situations to share their experience.

How can Parkinson’s affect day-to-day life?

There is no ‘typical day’ with Parkinson’s. It is a fluctuating condition, so it can change day-to-day or for some people, hour to hour. Because of the range of symptoms involved in Parkinson’s, it also impacts on everyone with the condition differently.

With medication and small adjustments, some people are able to maintain the same standard of life they had before diagnosis for a long time. However, for some people the effects on their daily life will be considerable, for example including pain, not being able to sleep, anxiety and even being unable to move at all for short periods (freezing).

As Parkinson’s is a degenerative condition, people will see their symptoms become worse over time and respond less to medication. This means the impact on daily life will be more noticeable, and ultimately many people will eventually need regular support from health and care professionals.

A huge thank you to Parkinson’s UK for providing the answers to these questions for us. You can read Part II of our series on Understanding Parkinson’s here.